tag:blogger.com,1999:blog-4073397588746430486.post6303611246501950993..comments2023-10-30T22:11:21.083-10:00Comments on Lyme Disease, Science, And Society: Camp Other: Chicago Tribune “Chronic Lyme: a dubious diagnosis” Post-MortemCamp Otherhttp://www.blogger.com/profile/10224408965529778101noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4073397588746430486.post-84567864412094806962011-02-06T09:41:53.104-10:002011-02-06T09:41:53.104-10:00Thanks for a moment of clarity. Life with Lyme'...Thanks for a moment of clarity. Life with Lyme's is a life of obstacles, and the Chicago Tribune article just create more obstacles for us. I also posted a response to the article you can view at isitlyme.blogspot.com which was a more personal opinion and not a formal analysis. Like you, I am trying to do my share to raise awareness of the state of Lyme's and other tick born illnesses by encouraging discussion. It is very difficult to get people involved in an issue until they have been personally directly or indirectly affected. The bright (however sad) news is that at the rate tick born illnesses are spreading indicate it will not be long before everybody will be directly or indirectly affected. Thanks again for doing your share to educate and inform about this just cause.W Kucerahttps://www.blogger.com/profile/04350483863439511391noreply@blogger.comtag:blogger.com,1999:blog-4073397588746430486.post-28089525336518439072010-12-28T20:08:32.124-10:002010-12-28T20:08:32.124-10:00Thanks, Elizabeth.
Yes, it is tiring, and dealin...Thanks, Elizabeth. <br /><br />Yes, it is tiring, and dealing with the Lyme itself is tiring, too. I think it depends on which journalists you are talking about - I certainly think the Roanoke Times recently did more balanced reporting on the controversy and support for Chronic Lyme Disease.<br /><br />Good point, to point out that Dr. Parsonnet testified against the NH protection bill and was also on the guidelines review panel. Thanks for adding that fact, it's important to know!<br /><br />I wish I knew which doctors and researchers out there outside of ILADS watched and supported the rebuttal to the 2006 guidelines... it would be fascinating to talk to them and find out what they would do if they were in the patients' shoes.Camp Otherhttps://www.blogger.com/profile/10224408965529778101noreply@blogger.comtag:blogger.com,1999:blog-4073397588746430486.post-51858563564089337912010-12-27T16:52:07.752-10:002010-12-27T16:52:07.752-10:00A great dissection of the article. Sorry that it ...A great dissection of the article. Sorry that it was so exhausting, but it is so helpful to those who don't yet understand the struggle that lyme patients endure when they are made to look like malingerers by the undereducated press. (That is to assume they (journalists) don't know any better. I believe sometimes they do.)<br /><br />Another important point to be made is that the author did not disclose the fact that Dr. Jeffrey Parsonnet did not just testify against the NH bill to protect lyme treating physicians, he was also a member of the so-called unbiased panel that was chosen to review the 2006 Guidelines and then determined that there was no need to make changes. I believe that is an important disclosure.Elizabethhttps://www.blogger.com/profile/09778889697360174596noreply@blogger.com