Lyme disease, science, and society: Camp Other

Sunday, July 15, 2012

0 House Subcommittee Hearing On Lyme Disease

In the "this could be interesting to watch" file:

HOUSE SUBCOMMITTEE HEARING ON LYME

The Lyme Disease Association, Inc (LDA) announces that the House Committee on Foreign Affairs, Subcommittee on Africa, Global Health, & Human Rights will hold a hearing 2PM EDT, on Tuesday, July 17, 2012 in 2172 Rayburn HOB in Washington, DC. The hearing, Global Challenges in Diagnosing and Managing Lyme Disease - Closing Knowledge Gaps, will be webcast and available live via the Committee website:

http://foreignaffairs.house.gov/hearings/view/?1455

US Representative Christopher H. Smith (NJ) is chairing the hearing.



UPDATE:

Go here for NOTES from this hearing, posted July 17, 2012:

http://campother.blogspot.com/2012/07/notes-house-subcommittee-hearing-on.html



For those readers who are viewing from outside Eastern Daylight Time (EDT) zone, the following guide may be helpful:

Chicago, Illinois: Tuesday, July 17, at 1:00 PM
Denver, Colorado: Tuesday, July 17, at 12:00 PM
Los Angeles, California: Tuesday, July 17, at 11:00 AM
Honolulu, Hawaii: Tuesday, July 18, at 8:00 AM
London, UK: Tuesday, July 17, at 7:00 PM
Sydney, Australia: Wednesday, July 18, at 4:00 AM

LDA President Pat Smith will be one of the witnesses presenting testimony─problems with doctors diagnosing and treating Lyme and with patients receiving treatment for Lyme.

Lyme disease numbers have continued to rise nationwide and throughout the world, and the Centers for Disease Control & Prevention (CDC) has indicated that in 2009, Lyme disease surpassed HIV in incidence ─ Lyme was the 7th highest in disease incidence reporting. Lyme is no longer a disease of the Northeast. LDA has developed a pie chart using CDC reported case numbers for 2010 showing that 9 Northeastern states had 66% of the case reports, the remainder of the country had 34% of reported Lyme cases─ a 10% increase in disease in the remainder of the country from 2008 figures (see www.LymeDiseaseAssociation.org for pie chart). Experts have been seeing a significant increase in ticks and tick-borne diseases in 2012.

Lyme is now found in approximately 65 countries worldwide. From May through mid July of this year, the LDA had an electronic billboard in Times Square, NY, presenting that Lyme disease is found throughout the body and all over the world.

Currently, Congressman Christopher Smith has a bill introduced in the US House of Representatives HR 2557, and Senator Blumenthal has one introduced in the US Senate, S-1381, both calling for a federal advisory committee on Lyme and tick-borne disease with representation from patients, voluntary Lyme organizations, and from doctors and scientists from a broad spectrum of viewpoints on Lyme disease.

The room for the hearing will hold about 150 people and the public is invited to attend. People should arrive 45 minutes early because there are lines for security. The Rayburn House Office Building does have a large cafeteria in basement.

The LDA encourages everyone to contact their federal legislators to encourage their attendance and co-sponsorship of Us House bill HR 2557 (C. Smith-NJ). Also notify your state officials to encourage their attendance or viewing of the hearing and notify other officials such as your State Health Department officials and any other individuals that have an interest in Lyme and other tick-borne diseases. Please distribute and post this release to your websites, blogs, newspapers and any other media.

Stay tuned for an update and action on the Senate Lyme bill S-1381 (Blumenthal-CT) in the next few weeks.

HEARING WITNESSES

Stephen W. Barthold, Ph.D.
Distinguished Professor
Department of Pathology, Microbiology and Immunology
Center of Comparative Medicine, School of Veterinary Medicine University of California, Davis

Raphael Stricker, M.D.
Vice President
International Lyme and Associated Diseases Society

Mark Eshoo, Ph.D.
Director, New Technology Development
Abbott

Ms. Patricia Smith
President
Lyme Disease Association

Mr. Evan White
Lyme Disease Patient

Ms. Stella Huyshe-Shires
Chair
Lyme Disease Action



Of course, of all the speakers who will be presenting that day, I am looking forward to what Stephen Barthold is going to say...

Edited to add: Mark Eshoo may also have something interesting to say about testing for Lyme disease. Refer to this post on LNE for more information on his research: http://www.lymeneteurope.org/forum/viewtopic.php?f=7&t=4014#p30012

UPDATE:

Go here for NOTES from this hearing, posted July 17, 2012:

http://campother.blogspot.com/2012/07/notes-house-subcommittee-hearing-on.html

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