Thank you for an informative post that outlines some of the symptoms of Lyme disease as well as facts about its transmission and difficulties in testing for it. I really appreciate, too, that you have offered a list of citations for people to read to get more information.
I've had persisting symptoms related to LD and other coinfections. Looking back on it, I can't help but think that my current situation could have been avoided had the first doctor who had seen me recognized my EM for what it was and given me enough antibiotics right there on the spot. Instead I was told there is no Lyme disease in the area where I was bitten and my saved tick was tossed.
If doctors aren't even following the IDSA Lyme disease guidelines for early textbook infections in patients at a bare minimum, patients are getting underdiagnosed and then end up becoming part of the controversy that is chronic Lyme disease.
This doctor on Blogger (My Lyme Disease Story) is getting treated for Lyme disease - she understands the patients' fight to get well. She had little training on Lyme disease in med school and wasn't advised on its dx in daily practice. If tests aren't that accurate early on, then doctors must rely on a clinical diagnosis to treat the patient properly. How does one ensure this happens so that people do not have to go through what I and others have been through?"
That is not the comment I wanted to post, though. It is a highly reduced and edited one in comparison to what I intended - even though it gets the gist across.
In the process of posting comments, I learned that the Huffington Post has a 250 word comment limit - something I wasn't expecting, and I had to cut an additional 300 words from my post and separate it into a different comment. Two hours later, and my other comment has yet to be posted. It read:
"On another note, in general: I really would appreciate it if the media began discussing the pathogenesis of Lyme disease and we began raising the bar on how Lyme disease is covered as a topic. We need more scientific research, and for research that's already out there to be discussed in the media. We need more intelligent discourse that goes beyond, "the IDSA Lyme guidelines panel is an authoritative voice in this argument" vs. "the doctors who treat this condition, chronic Lyme, are wrong".I commented on a few other posts made there, and I could comment more to individual people - but I think next up I want to leave comments on Dan Rodrick's op-ed piece.
It's an oversimplification of what's going on and sets up a situation that readily polarizes the audience. There is so much going on that most newspaper articles only just begin to scratch the surface.
I have been devoting a fair chunk of my time in writing a blog about these issues and discussing research on Lyme disease and other tickborne diseases - as well as microbiology in general. I would love to see more efforts online to get the word out about what is known and not known about tickborne diseases from a scientific perspective."
I wish I knew in advance when Lyme disease related articles were going to be posted to major news outlets so I could read them and comment sooner. Maybe I need some sort of daily script I can run that looks for key words... that would probably help.
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